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Questions and Answers session with Roche about Risdiplam

  • 21 August 2020

We joined a session with Roche earlier this week to ask them questions following their recent announcement about risdiplam. The following FAQs have been checked for accuracy with Roche where they relate specifically to risdiplam.
Questions and answers apply to people living in England, Scotland, Northern Ireland and Wales.

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SMA Awareness Month – MHRA Webinar

  • 21 August 2020

A really interesting webinar hosted by our very own Joseph talking to Dan from the MHRA about the regulatory process associated with rare diseases and their involvement in assessing suitability and helping licensing drugs.

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A message from us to you

  • 8 August 2020

Dear Community TreatSMA has taken today to give remembrance to the Angels and the Warriors of the global SMA community tonight as we light a candle alongside you all to remember and make sure we never forget. In honour of…

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