Pathfinders Neuromuscular Alliance are hosting a Natural Nutrition Event
Pathfinders Neuromuscular Alliance are hosting a Natural Nutrition event on Monday 15th March at 1pm.
Pathfinders Neuromuscular Alliance are hosting a Natural Nutrition event on Monday 15th March at 1pm.
Shielding guidance for those who are clinically extremely vulnerable has been extended now until the 31st March 2021, instead of the previous date given 21st February 2021.
This morning we have received an update from NHS England making it easier to understand who is and isn’t eligible for treatment under the EAMS programme.
TreatSMA are today representing the community at the NICE appraisal of the first Gene Therapy for SMA, Zolgensma (onasemnogene abeparvovec-xioi).
TreatSMA have launched a new Facebook group called TreatSMA‘s Professional Therapy Group.
A new journal article by Gusset et al., 2020 called A Decision for Life – Treatment decisions in newly diagnosed families with spinal muscular atrophy (SMA) has been published.
This week we had another amazing webinar with Marion, this week focusing waking up some of the weakest muscles either with or without treatment. It’s easy to think that because you are so weak you now can’t do anything with a particular muscle or muscle group, but in this webinar Marion shows you just how…
We have received some advice from Professor Francesco Muntoni, Professor Ros Quinlivan, Dr Adnan Manzur and Dr Chiara Marini-Bettolo who are four neuromuscular experts leading the paediatric and adult North Star and SMA Reach networks of neuromuscular health professionals in regards to COVID-19 vaccinations.