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Dawn’s story

  • 16/07/2017

My name is Dawn Wilbur: aged 54 and proud mother of a happy, fun, sporty, typical ‘woteva’ teenage son. We are extremely blessed to live in a picturesque village in Cheshire.  I live with type 3 SMA. My intelligence and…

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Finley’s Family

  • 17/02/2017

I honestly do not know where to start. Finley has totally enriched our lives but inevitably when a diagnosis like this is made, with it there comes pain and mortifying revelation. Our world changed dramatically when he was diagnosed with…

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Rexy’s Family

  • 17/02/2017

We were lucky with diagnosis, we’re looked after by a muscular dystrophy centre of excellence. Our team is very positive, we spoke about the need of future ventilation the importance of physio. We were told that it was an exciting…

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