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FAQ asked about type 1 SMA patients

  • 23/01/2019

Below are some the most frequent questions and problems that we are seeing within the Type 1 community. We have compiled a guide based on the evidence from the newly Published Standards of Care, AA diet website and other documents or protocols that are used within the community.

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Nasogastric intubation

  • 10/01/2019

**I am not medically trained, this post is from a parents point of view and experience** Nasogastric intubation is a medical process involving the insertion of a plastic tube (nasogastric tube or NG tube) through the nose, past the throat,…

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Are you sitting comfortably…

  • 05/12/2018

Please note all views are my own and are not affiliated with the company fledglings.

Just the ability to sit is a luxury most of us take for granted and something which a lot of people with SMA find difficult or even impossible. Before finding this product, the only seating my daughter had was a big clumpy tumble form chair and her Wizzybug, everything else was on normal seats being propped up by a gazillion cushions whilst still flopping over, floor play was nigh on impossible and bath time out of her own home was a nightmare.

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Powerchair choices – our experiences with the Tiny Trax

  • 14/09/2018

Deciding on which powerchair to get for your child, especially their first real one, can feel like a daunting task. A lot of SMA children who have the ability to control a powerchair from a young age start off with a Whizzybug which is a small motorised powerchair suitable for ages 2-5 (approximately), it gives them their first real taste of freedom and independence and the ability to join in and play with friends and family. It also prepares them for the next step in the powerchair world.

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Adapted Trikes

  • 06/08/2018

Please note this is not an affiliated Theraplay post, this is a review compiled by an owner of an adapted trike who has no association to the company and the views are their own. Adapted trikes are a great way…

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Innowalk – Parent Review

  • 23/07/2018

Please note this is not an official Innowalk post, this is a review compiled by an owner of an innowalk who has no affiliation to the company and the views are their own * As the website will state “The…

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