skip to Main Content

Since the original Consensus Statement for Standard of Care in Spinal Muscular Atrophy was first published in 2007, medicine and science has made tremendous progress. In 2015–2017, a team of 64 experts reviewed the existing knowledge and clinical practice and developed an upated version of the Standard of Care.

The work carries a simple title Diagnosis and management of spinal muscular atrophy and was published in the respected medical journal Neuromuscular Disorders in early 2018 as two parts:

PART 1: Recommendations for diagnosis, rehabilitation, orthopedic and nutritional care

Download Standard of Care Part 1

PART 2: Pulmonary and acute care; medications, supplements and immunizations; other organ systems; and ethics

Download Standard of Care Part 2

We strive that these medical guidelines are accepted and followed by all the doctors who care for patients with spinal muscular atrophy.

Back To Top