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If you have just received a diagnosis of SMA for yourself or your child and don’t know what to do next,

  1. Read all the information on our website
  2. Meet other SMA families on the TreatSMA Facebook group, our fantastic SMA Community
  3. Familiarise yourself with SMA Route Map, so that you know what to expect
  4. Get in touch with the Outreach Service of SMA Support UK if you’d like to receive person-to-person support
  5. Discover the Care sections of following websites: SMA Support UK, CureSMA
  6. Join our fight to make SMA treatments available in the UK.
  7. If you have questions, get in touch with us!


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