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If you have just received a diagnosis of SMA for yourself or your child and don’t know what to do next,

  1. Read all the information on our website
  2. Meet other SMA families in the TreatSMA Facebook group, our fantastic SMA Community, and ask them any question that comes to your mind.
  3. Familiarise yourself with SMA Route Map, so that you know what to expect
  4. Get in touch with the Outreach Service of SMA Support UK if you’d like to receive peer support
  5. Discover the Care sections of following websites: SMA Support UK, CureSMA. Proper care is crucial in SMA and you will have to learn a lot!
  6. Ask your doctor for Spinraza treatment. If no treatment is available, get in touch with us to talk about other options.
  7. Join our fight to make SMA treatments available in the UK for everyone.
  8. Always, if you have questions, get in touch with us!


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