Dear Community, Earlier today we were contacted by Labour MP Kerry McCarthy on behalf of her constituent and SMA community member Jake Ogborne. Jake and his family have started the petition 'Fund Spinraza for all SMA patients on the NHS'. As…
The government have released information on how to get support. You can access it here. You can use this service to: get access to priority supermarket deliveries ask for someone to contact you about any local support that’s available update…
The UK Government have released new guidance for Shielders. You can read the new guidance here.
TreatSMA helped Shielders get their voices heard about the new shielding policies. Many shielders have been left with so many 'What If's'! We are calling on the government to give more support to those who need and want to shield!…
Today Marion discussed physio for Infants and Babies
Today Marion discussed how to achieve goals you set yourself whilst receiving treatment.
Today Marion discussed Equipment. This is part 2 of her talk as is proved so popular!
Today Marion discussed going back to school during the Covid-19 pandemic