Mary has become an expert and the go to person in the US with regards to the amino acid diet, something Mary used on her own daughter at the age of 5, and attributes the stability to of her condition…
We were fortunate enough to have one of the U.K.'s leading consultants in Spinal Muscular Atrophy to spend some time with us and the community to talk about SMA treatments as well as answer some questions.
Dear Community TreatSMA has taken today to give remembrance to the Angels and the Warriors of the global SMA community tonight as we light a candle alongside you all to remember and make sure we never forget. In honour of…
Having the right equipment is critical to those with SMA to help maintain functions but also to help with everyday life. This week Marion took us through all the different types of equipment, and in fact, there were so many…
You will be aware on the 8th August we remember all those who we lost to SMA. Our angels who we continue to remember with love. As a type 1 father who lost my son Toby, it is not just one day, I remember him everyday.
We are overjoyed to be able to bring you the news that the FDA has approved risdiplam for the treatment of types 1, 2 and 3 with no age restrictions.
On Friday evening TreatSMA hosted a webinar with Michelle Woods who is a SENDCo at a primary school in Kent. She has been a primary school teacher for 20 years and a SENDCo for 6 years. Michelle currently works in…
Another amazing session with Marion, this episode focusing on pain.