On 6th March, TreatSMA along with many families and adults from the SMA community will once again travel to Manchester for the third appraisal meeting of nusinersen.
Contrary to global developments and expert advice, today the NHS formally refused to back a newborn screening programme for spinal muscular atrophy.
An event dedicated to the situation of SMA Families will take place on 25th February in the Parliament. Please invite your MP!
We are extremely happy to share the long-awaited news: the Scottish government will be making Spinraza available to all people with spinal muscular atrophy in Scotland.