Physio with Marion – Assessments
In this session Marion talks about the different assessment and why they are important not just for professionals but also for yourselves to measure progress especially with treatments.
New Facebook Group, ‘TreatSMA Community’s Physio and Exercise Ideas and Tips’
TreatSMA has launched a new Facebook group called TreatSMA Community’s Physio and Exercise Ideas and Tips
Physio with Marion – Fingers, arms and hands
In this session we look at all of the different exercises that can be done to help build muscles particularly in the upper body as more people are starting to receive treatment. Really good session, it's amazing what you can…
Letter written regarding policy on shielding for paediatric patients
Dear community We understand there are some difficulties for children with SMA around getting support to shield, therefore alongside community member Irvana, we have written this letter to send to the CEOs of hospitals. Please do let us know your…
Joint Committee on Vaccination and Immunisation (JCVI) recommends unpaid carers should be in Priority 6 category for Covid-19 vaccination
We have seen a lot of parents/unpaid carers enquiring whether they're prioritised for the Covid-19 vaccination. Carers UK issued a press release stating unpaid carers were to be included in priority group 6 for the Covid-19 jab, you can read…
Upper Limb Assessment – downloadable document for 10/01/21 Physio with Marion session
This week, during the webinar, Marion will be using the Upper Limb Assessment. This is available to download below so that during the webinar you can self assess which will help to give you an idea of activities to try…
Survey exploring the effects of catching Covid-19 in people with, and carers of people with, SMA
It is felt there is not enough data in terms of covid-19 in Spinal Muscular Atrophy, therefore we would appreciate it if people who have had covid-19 within the SMA community could fill out one or both of these surveys.…
Family Fund offers iPad/laptop grants for disabled children
We were sent this information and thought it may help some families to know Family Fund offers grants towards ipad/laptops for disabled children. To find out if you are eligible or apply please visit their website here