Campaign for Access to Treatments for Spinal Muscular Atrophy

A new UK Rare Diseases Framework has been published demonstrating the commitment of the UK Government to improving the lives of people who have rare conditions.

This morning we have received an update from NHS England making it easier to understand who is and isn’t eligible for treatment under the EAMS programme.

TreatSMA have launched a new Facebook group called TreatSMA‘s Professional Therapy Group.