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At a Spinraza meeting at NICE today

  • 14/09/2018

Today NICE held a closed-door meeting dedicated to discussing challenges with nusinersen appraisal. Clinical experts as well as TreatSMA, SMA Support UK and MD UK were invited to present their views.

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Powerchair choices – our experiences with the Tiny Trax

  • 14/09/2018

Deciding on which powerchair to get for your child, especially their first real one, can feel like a daunting task. A lot of SMA children who have the ability to control a powerchair from a young age start off with a Whizzybug which is a small motorised powerchair suitable for ages 2-5 (approximately), it gives them their first real taste of freedom and independence and the ability to join in and play with friends and family. It also prepares them for the next step in the powerchair world.

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