Spinraza® has been recommended as a standard NHS treatment for all patients with spinal muscular atrophy in England and Wales.
#WearYourHurt campaign photos. We are an amazing community!
It was a very interesting and engaging day for the TreatSMA team at the 2019 NICE Conference in Manchester, where NICE and NHS decision makers listened about and acknowledged our concerns.
TreatSMA is talking to NICE and NHS decision makers at a Manchester conference today
Spinraza demostrated as incredibly effective in types 2 and 3 SMA
We are asking the SMA community, friends and family to wear in public on the 7th May a plain t-shirt or top with a personal message to NHS England and NICE telling them we will not wait any longer.
NICE has not yet been able to recommend Spinraza, and an urgent Committee meeting has been called.
An Expanded Access Programme of Spinraza starts in Russia today.