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Support grows for Spinraza

  • 26 June 2019

TreatSMA continues to work with NICE, NHSE and Biogen. We are seeking to expand inclusion if possible based on the recent appeal and campaign that TreatSMA and the community colaborated on together. TreatSMA and the community have made ITV News…

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The fight goes on

  • 17 June 2019
After sending additional information to the stakeholders, we have now proceeded with appealing the proposed nusinersen guidance and the Managed Access Agreement.
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Spinraza treatment only for some?

  • 8 June 2019
We have analysed the NICE/NHS eligibility criteria for Spinraza and we view them as potentially depriving hundreds of children and adults of access to the only treatment. Read on.
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