The government of Macedonia has agreed to provide Spinraza treatment to all those with spinal muscular atrophy.
Hungary has agreed to provide Spinraza treatment to all children with SMA.
It gives us enormous pleasure, on behalf of everyone in the team here at TreatSMA, to say a massive thank you to the Students and Staff at Fairfax Academy, Birmingham for the generous donation of £465.41.
Pressure put on NHS by the UK medical and patient communities bore fruit last week when NHS England finally agreed to amend its Commissioning Policy for Nusinersen Expanded Access Programme so as to include all those with SMA type 1.
Spain announced that Spinraza will be available to the majority of people with spinal muscular atrophy under the Spanish healthcare system.
If you or someone close to you are affected by spinal muscular atrophy, please help to advocate for wide access to Spinraza in the UK.
Biogen has provided the following community statement on the final results from CHERISH, a Phase 3 study of SPINRAZA.
Today the government of Norway agreed to fund Spinraza (nusinersen) treatment for all patients with SMA under 18 years.