Dear Community, During the last few weeks NHSE and Biogen has been discussing the support for EAP. As we know, NHSE current official position is that they are not willing to fund additional auxiliary costs associated with Spinraza administration. Whilst…
Today a group of TreatSMA families attended a meeting of the All-Party Parliamentary Group for Muscular Dystrophy at the House of Lords.
First ever treatment for life-devastating condition is approved by European Commission!
On the 19th of May, Biogen attended a meeting arranged between 4 patient advocacy groups: Muscular Dystrophy UK, SMA Trust, SMA Support UK and TreatSMA.
EAP started/starting Newcastle Belfast East Dundee Great Ormond Street Oxford Evelina Leeds Liverpool Glasgow Bristol Cardiff Sheffield (August) Working towards EAP Cambridge Birmingham Oswestry Manchester We're still waiting on responses from St George's (London) Contacts we have Evelina Childern's Hospital: Dr…
Today, Committee for Medicinal Products for Human Use of the European Medicines Agency adopted a positive opinion on Spinraza!
Biogen announced that the Expanded Access Programme for nusinersen will not be extended to SMA types 2 and 3.