Physio with Marion – Infants and Babies
Today Marion discussed physio for Infants and Babies
Physio with Marion – Treatment Goals
Today Marion discussed how to achieve goals you set yourself whilst receiving treatment.
Physio with Marion – Equipment p.2
Today Marion discussed Equipment. This is part 2 of her talk as is proved so popular!
Physio with Marion, Pandemic Special – Back to School
Today Marion discussed going back to school during the Covid-19 pandemic
What a community! Thank you.
Today TreatSMA made submissions to NICE to help with the appraisal of Risdiplam to be made available through NHS. We have included extensive data collected from community (over 300 responses in total, so massive thank you).
NICE Announce a Review of the MAA Guidance for Spinraza
NICE have announced they are going to review the MAA Guidance for Spinraza in regards to Type 3 patients.
Physio with Marion – Equipment
Today Marion looked at equipment, how it's used and what you should be looking for in general.
EAMS update and how you can help
You may remember some time ago we posted that MHRA had approved an EAMS process for accessing risdiplam. Just to remind everybody what an EAMS process is, it stands for Early Access to Medicines Scheme, and is designed to provide those who currently have unmet clinical needs to get access to life-saving treatment before it is licensed in the UK.