As we see increasing numbers of COVID19 infections TreatSMA is committed to providing the community with as much help and support as possible.
TreatSMA have today released a community statement with regards to the current lack of information for a vulnerable community.
We are very humbled and proud to be nominated for the Community Organisation Award at the annual National Diversity Awards 2020. We have been nominated by you, the community, who stood beside us, and fought for what we believed in, for what we all believed in. Without your drive and your spirit, we would not be in the position we are today.
TreatSMA hosted its own event celebrating Rare Disease Day on February 29. There are estimated 8000 rare diseases across the world affecting over 300 million people, so we decided to showcase some other conditions in addition to SMA.
As we published earlier in the week TreatSMA is proud to be supporting the Royal Holloway’s 10th Annual Rare Disease Day Event on Wednesday 26th in support of Rare Disease Day. However, the excitement doesn’t stop there.
TreatSMA hosted another Physio with Marion session on Sunday, and thanks to Marion and all of those who took part in asking questions, his week’s session focused on standing and walking and there were lots of great questions.