Trials are taking place for the new antisense oligonucleotide drug by Biogen. Similar to Spinraza, but believed to have a better stability in the human body. This means larger dose can be administered through spinal tap at longer intervals compared…
Disability Law Service provides free legal advice on community care, employment, housing and welfare benefits to people with disabilities and their carers to ensure that they have access to their rights and justice. The charity aim to respond to enquiries…
World health organisation WHO, maintains a Model Lists of Essential Medicines which serve as a guide for the development and updating of national and institutional essential medicine lists to support the procurement and supply of medicines in the public sector, medicines reimbursement schemes, medicine donations, and local medicine production. A special committee meets every two years to update this list with medicines that are recognised as essential.
Swimming is a low-impact form of exercise suitable for people with SMA, as it supports peoples body weight and reduces the strain on weakened muscles and joints. This low-impact nature allows individuals with SMA to improve their overall strength and…
Register for free to go to the Disability Expo Event at 6th to 7th July 2023 at the Excel London. Gain entry to this two-day event for people with lived experience of disability. View hundreds of exhibitors showcasing the latest…
Continuing research into spinal muscular atrophy (SMA) uncovered another critical piece of information about the condition neurologists have sought for decades.
Those dealing with EHCPs and needing help, guidance or advice these are the opening times of the SOS SEN helpline before they break for the Easter Holidays.
Yesterday Muscular Dystrophy UK launched a Cost of Living Grant for people living with muscle-wasting or weakening conditions.