TreatSMA has some exciting news to share about the new experimental drug being developed by Roche.
The Swiss Office for Social Security announced today that Spinraza will be funded across all types of spinal muscular atrophy in Switzerland.
Portuguese national health service has decided to offer Spinraza treatment.
The government of Macedonia has agreed to provide Spinraza treatment to all those with spinal muscular atrophy.
Hungary has agreed to provide Spinraza treatment to all children with SMA.
It gives us enormous pleasure, on behalf of everyone in the team here at TreatSMA, to say a massive thank you to the Students and Staff at Fairfax Academy, Birmingham for the generous donation of £465.41.
Pressure put on NHS by the UK medical and patient communities bore fruit last week when NHS England finally agreed to amend its Commissioning Policy for Nusinersen Expanded Access Programme so as to include all those with SMA type 1.
Spain announced that Spinraza will be available to the majority of people with spinal muscular atrophy under the Spanish healthcare system.