Despite SMA being the most common genetic cause of death amongst babies, awareness of the condition is limited. Increasing awareness and understanding of SMA amongst the public, and importantly amongst decision makers, is vital in fighting for treatment and the highest standards of care. Below are some examples of recent awareness raising work that TreatSMA members have been involved in. We will also add details of upcoming events and activities.
If you have any ideas for activities to build awareness and would like to discuss them with the TreatSMA team, please get in touch with us – we would love to hear from you! Your involvement in increasing awareness of SMA and the need for access to treatment is hugely appreciated and will make such a difference.