Treatsma website reaches national news in Bhutan.
Away from TreatSMA our volunteers have been busy trying to raise awareness in countries where SMA has never been heard off.
Supporting Palden the second only diagnosed child in Bhutan, our volunteers have been working closely with Paldens mother Ugyen in starting an advocacy group and campaigning for access to treatment and equipment.
With the help of Namgay a fantastic Bhutan national journalist, Palden and her mother reached the biggest ever signed petition in Bhutan directed to Roche to supply treatment to Palden, not to mention introducing the Bhutan population that could potentially have 17,500 carriers to spinal muscular atrophy.
You can read the full press article here.
You can follow SMA Bhutan here.