It is felt there is not enough data in terms of covid-19 in Spinal Muscular Atrophy, therefore we would appreciate it if people who have had covid-19 within the SMA community could fill out one or both of these surveys.
There are two surveys, one for people with SMA and one for parents/carers of people with SMA. If you are a parent/carer filling in the survey and yourself, and the person you care for, have had covid-19 please fill out both surveys.
You can fill out the surveys on the links below, your answers will help us build a picture of how covid-19 effects people with SMA.
- If you have SMA please fill out this survey – The effects of Covid-19 in people with Spinal Muscular Atrophy
- If you are a parent/carer of someone with SMA please fill out this survey – The effects of Covid-19 in parents/carers of people with Spinal Muscular Atrophy