As part of a PhD project, the John Walton Muscular Dystrophy Research Centre in Newcastle are conducting a survey to explore access to Standards of Care for people with Spinal Muscular Atrophy (SMA).
They have asked us to spread the word within the SMA community, they would also like to make it clear that only one survey per patient is filled in, this can be by the patient, or by a relative or carer on behalf of the patient.
They are also conscious that due to the current situation with COVID patients’ regular routines might have changed substantially. If this is the case, respond to the survey reflecting their usual life before the outbreak.
You can complete the survey following the link below: