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New Trustee Announcement

New Trustee announcement

TreatSMA are extremely happy and proud to announce that Marni Smyth has become the sixth trustee that has joined our team. Marni has been in discussions with TreatSMA for a number of weeks and we take great pleasure in announcing the news.

Hi Everyone

I’m Marni and I have SMA type 2 and live independently with the help of my Mafia (my nickname for my team of Personal Assistants). Outside of TreatSMA I am a student at the University of Huddersfield researching how to make screen printing (traditional textile printing process) accessible for people living with NMD.

In my spare time I love doing makeup, I have a makeup based Instagram (@marni.smyth) where I post all my looks. This is a hobby that I hope to turn into a career at some point in the future.

I have been following and participating in TreatSMA campaigns and protests now for two plus years. I truly believe in the ethos and drive behind TreatSMA’s work, so when I was asked if I wanted to become a trustee, I was so excited to be a part of the team. I hope to bring insight, added drive and further perspective from a person living with SMA. I also hope to help run some fun online community events to boost the community’s spirits during this scary time.

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