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TreatSMA Frustration At Lack Of NHS, NICE Rare Disease Policy Changes

TreatSMA frustration at lack of NHS, NICE rare disease policy changes

In the view of recent NHS plan we once again contacted NHS, Government and NICE highlighting that no significant changes in the policy has been made to accommodate rare diseases. The letter shows our frustration with the system and was signed by those who previously agreed for their name to be added.

Community letter

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