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Taking Our Fight For Treatment To The Media

Taking our fight for treatment to the media

Even since we learned about the disastrous NICE recommendation we have stepped up our efforts to highlight our cause and tell the world about our fight for access to treatment. Big thank you everyone who has helped! Please continue reaching out to the local and national media and telling about our situation. Feel free to share our recent press release as well as our contact details if needed.

https://news.sky.com/video/boy-denied-life-extending-sma-drugs-through-nhs-11475496

https://www.chroniclelive.co.uk/news/north-east-news/forest-hall-family-left-heartbroken-15025954

https://www.manchestereveningnews.co.uk/news/greater-manchester-news/spinal-muscular-atrophy-spinraza-protest-15061343

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