On 27 June 2018, NICE Appraisal Committee will meet in Manchester to discuss draft recommendation for Spinraza provision in England and Wales. Parts of the meeting will be open to the public and you are welcome join.
Three Patient Representatives, nominated by TreatSMA, SMA Support UK and SMA Trust respectively, will speak for the SMA Community at the meeting table.
Parts of the meeting will be open to public, so anyone who has interest in Spinraza being available in the UK is welcome to come and observe. Places are limited and early registration is required.
The meeting agenda and registration form can be accessed here:
The meeting starts at 10:00 sharp at the offices of National Institute for Health and Care Excellence, Level 1A, City Tower, Piccadilly Plaza, Manchester M1 4BT.