Spinraza, a drug whose development was partly funded by the SMA Community, has been turned into one of the most expensive treatments on the planet. Its absurd list price has put this lifesaving teratment it out of reach of thousands of people. Several countries decided they could not afford it for their citizens. As a result, despite an effective treatment being at hand, babies and children worldwide are dying, in vain waiting for receive the drug that hardly anybody in the world can afford.
Sign the petition to demand that Biogen, the drug’s manufacturer, reduces Spinraza price to a reasonable level.