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Do you need help with an EHCP?

Those dealing with EHCPs and needing help, guidance or advice these are the opening times of the SOS SEN helpline before they break for the Easter Holidays.

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Cost of Living Grant

Yesterday Muscular Dystrophy UK launched a Cost of Living Grant for people living with muscle-wasting or weakening conditions.

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The pause in access to treatment with Zolgensma in children with type 1 SMA aged older than 12 completed months has been lifted.

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UK SMA Patient Registry need your help

The UK SMA Patient Registry has asked TreatSMA to reach out to the community to help the research team at Columbia University, New York who are currently running a project focused on fatigue in SMA. The survey criteria is for eight…

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