Results are in! Thank you to everyone who entered TreatSMA’s Great Lockdown Bake-off 2020. Everyone’s entries were truly amazing – guest judge Tom Herbert had a tough job on his hands picking a winner.
MHRA have taken action to halt the sales of fingerprick antibody tests for coronavirus (COVID-19), utilising capillary bloody, due to concerns regarding reliability.
Another great session with Marion, this week focusing on pain and talking about spine and hips.
TreatSMA hosted another Physio with Marion session on Sunday, and thanks to Marion and all of those who took part in asking questions. This week Marion focused on exercising with therabands.
Patient organisations have asked for NICE and NHS to answer a few very important questions with regards to MAA and access to Nusinersen. We are now able to share their answers in the attached documents. We will continue to push for expanded access for this treatment to make sure that everybody gets a chance.
AveXis, a Novartis company, announced today that the European Commission (EC) have granted conditional approval for Zolgensma for the treatment of patients with 5q SMA, activating a ‘Day One’ access programme.
For the week commencing 18th May 2020 TreatSMA want to see your creative baking skills. Entries will be judged on decoration and the look of the cake when cut. There is also a 3rd category for creativity if you are unable to get traditional ingredients.
We have pleasure in announcing the exciting news that Roche today submitted their application for an Early Access to Medicines Scheme (EAMS), a UK specific early access program which is approved by the MHRA.